online resources

There are resources, services, and programs to help people with CTCL. Check libraries, bookstores, and the Internet for information.

The following is a list of societies, organizations, and Web sites that offer advice and support:

• The Cutaneous Lymphoma Foundation, a national nonprofit advocacy, education and support organization can be found online at www.clfoundation.org.
• Leukemia & Lymphoma Society, a comprehensive resource for the lymphoma community, can be found at www.lls.org.
• Association of Cancer Online Resources (ACOR), an Internet-based public charity dedicated to improving the quality of care provided to cancer patients and the quality of life of patients, survivors and their caregivers, can be found online at www.acor.org.
• CancerCare, a national nonprofit organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones and the bereaved, can be found online at www.cancercare.org.
• Lymphoma Information Network, a complete guide to Hodgkin's and non-Hodgkin's Lymphoma, can be found at www.lymphomainfo.net.
• Lymphoma Research Foundation, the nation's largest lymphoma-focused voluntary health organization devoted exclusively to funding lymphoma research, can be found online at www.lymphoma.org.
• National Cancer Institute, the Federal Government's principal agency for cancer research and training, provides accurate, up-to-date information about many types of cancer, information about clinical trials, resources for people dealing with cancer and information for researchers and health professionals, can be found online at www.cancer.gov.
• The National Coalition for Cancer Survivorship (NCCS), the oldest survivor-led cancer advocacy organization in the country, can be found online at www.canceradvocacy.org.
• National Organization of Rare Disorders (NORD), a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them, can be found online at www.nord-rdb.com.